by silvzback
The right to exercise all basic human rights are consistently diminished or totally denied to those with intellectual disability labels. In this country, federal, provincial and territorial human rights legislation was developed incrementally. The principle that persons with disabilities are entitled to the same rights as the rest of the population began to make its way into our statues and common law in the 1970s and 1980s. However, the full entitlement of persons with intellectual disabilities to exercise thse rights has yet to be achieved. As a family member to multiple individuals with intellectual and mental disabilities, the experience of witnessing rights violations of people with disabilities is all too familiar. With the Presidential election coming up on November 6th, the “universal right” to vote has been something I have become interested in in the context of disability. Providing rights information in a socially contextualized manner is essential, and people with intellectual disabilities who require information in very specific forms case by case to understand what is being said, make this an even more pressing and misunderstood field.
My initial interest in this research topic derives from my live in aunt who has Downs Syndrome. She lived with my grandmother until she died ten years ago. After, she moved in with my aunt for seven years, and the last three years has lived with us. My grandma never introduced Sarah to voting because she thought that with her level of intelligence it would be as good as vote manipulation. My aunt I dont think cared as much about the morality of it, and saw Sarah as an adult whose situation was effected greatly by those who are in power (funding for programs she attends, social security, special education, etc) and therefore should vote for those who were more in support of disability rights and funding. Sarah immensely enjoyed voting and so though my mom thinks Sarah votes the same way she does, because she hears all of her political information by way of my mother whom she spends the majority of her waking hours with and that this might not be “right”, she doesn’t have the heart or the right to prevent Sarah from continuing to do what she loves, voting.
Sarah is also my access. I will go with her as usual to Special Olympics events and see if I can speak to some of her friends. I can foresee permission posing a problem. All of her friends are not able to sign documents for themselves, but rather have guardians responsible for them. The more intelligent among them who are more likely to vote and give good interviews go to the events alone and therefore accessing their parents will be all but impossible. I am entertaining the idea of interviewing some parents of individuals who dont vote about why they dont take their children to the poles.
My write up will include what effects individual decision making capacity, the human rights of people with intellectual disabilities, and the challenges to the implementation of those rights. I am interested to see what insight my interviews shed on the topic.